Charlie Gard's parents plan charitable foundation in his memory

30 July, 2017, 00:29 | Author: Andrea Terry
  • Image credit

The 11-month-old baby suffered from an extremely rare genetic condition causing progressive brain damage and muscle weakness, and his parents' long struggle to save him drew an worldwide outpouring of sympathy, including from US President Donald Trump and Pope Francis.

Charlie died on Friday, July 28, a week before his first birthday.

The Vatican-owned Bambino Gesu children's hospital had offered to transfer Charlie to Rome for treatment, which the pope said should be provided "until the end", as his parents wished.

Great Ormond Street Hospital took the parents to court over the hospital's desire to withdraw Charlie's life support. His case ended up in the courts when doctors opposed the plan, saying the untested therapy wouldn't help Charlie and might cause him to suffer.

The Pope and Theresa May are leading tributes to Charlie Gard. "My thoughts and prayers are with Charlie's parents Chris and Connie at this hard time", May said in a statement released on Friday.

He said: "Saddened to hear of the passing of Charlie Gard. Karen [his wife] and I offer our prayers and condolences to his loving parents during this hard time".

"Our attractive little boy has gone, we are so proud of you Charlie", Connie Yates, Charlie's mother, said in a statement, as cited by The Guardian.

Charlie's parents fought ardently in court to ensure their baby was transferred to NY to receive an experimental treatment.

Turning to the newspapers, the Daily Mail, running with the headline "Rest in Peace, Charlie", had always supported the case of Gard's parents Connie Yates and Chris Gard, and said the case had "raised so many questions about our age".

The 11 month-old died in a hospice - after being moved there from Great Ormond Street Hospital.

On 23 May, the couple's appeal was dismissed by the Court of Appeal.

The couple set up a campaign and ask supporters to sign a petition and write letters to the prime minister of United Kingdom for Charlie's treatment. Charlie Gard's parents also can't remove him from the hospital room.

"My thoughts and prayers with Charlie's parents Chris and Connie at this hard time". "And the case of Charlie Gard is a terrifying warning of what happens when parental rights are removed, and when government officials and courts decide all these decisions related to children".

Pope Francis had tweeted his support for Charlie's parents.

Doctors, nurses and other staff at Great Ormond Street Hospital received messages containing death threats.

President Donald Trump offered his help to Charlie, posting on Twitter that he would be "delighted to do so". "We had the chance but we weren't allowed to give you that chance". "Mummy and Daddy love you so much Charlie, we always have and we always will and we are so sorry that we couldn't save you", his parents wrote when they announced their decision. "Sweet dreams baby. Sleep tight our handsome little boy'".

His final days were spent in a different battle as his parents fought to be able to take him home to spend precious hours, and then to a hospice, where his life support was eventually withdrawn last night.


  • Tobacco shares nosedive on FDA regulation warning

    Tobacco shares nosedive on FDA regulation warning

    Mostly because of cigarette smoking, tobacco use is the leading cause of preventable death in the U.S. and around the world. British American Tobacco's USA subsidiary, Reynolds American Inc., said it was encouraged by Mr.
    Health agency says child managing HIV without meds

    Health agency says child managing HIV without meds

    A long-acting injectable antiretroviral therapy may be just as effective as a daily oral dose in treating HIV, a trial has shown. The child from MS was given treatment just a day after they were born and HIV remained undetectable until 27 months afterwards.

    Nintendo's Switch mobile app is now available

    As for the third-party front, the situation is slowly improving even though a few developers still seem hesitant to get on board. That means it's easy to squeeze in a round or two when you otherwise probably wouldn't have time to play another game .
  • Vatican Shuts Down Fountains as Drought Hits Rome Italy

    Vatican Shuts Down Fountains as Drought Hits Rome Italy

    The Governorate of Vatican City State has chose to turn off all the fountains, both the external ones located in St. Peter's Square that have cascaded water for centuries since their construction in the 17th century.
    What Trump's team is saying on pardons

    What Trump's team is saying on pardons

    He announced the new press secretary to take over from Spicer, who resigned earlier on Friday, would be Sarah Sanders. From there, Trump promoted Huckabee Sanders, Spicer's deputy, to the role of press secretary.
    Tensions High In Jerusalem Over Recent Escalation In Violence

    Tensions High In Jerusalem Over Recent Escalation In Violence

    Muslim leaders signaled earlier Sunday that they would reject any new proposal that leaves additional security measures in place. Israel made a decision to install the metal detectors after Arab-Israeli gunmen had shot two police officers dead.
  • Philander fit to bat for South Africa

    Philander fit to bat for South Africa

    England lost Cook shortly after lunch when he was bowled by an excellent delivery from fast bowler Morkel for just seven.
    California woman arrested after posting deadly crash on Instagram

    California woman arrested after posting deadly crash on Instagram

    She was arrested on charges of vehicular manslaughter while under the influence and DUI and is now at the Merced County Jail. I f****** killed my sister, OK? Sanchez says she knows she is going to jail for life and apologizes for what she has done.
    Sensex, Nifty at record high; RIL, HDFC Bank stocks fuel rally

    Sensex, Nifty at record high; RIL, HDFC Bank stocks fuel rally

    The Monday green was a direct result of International Monetary Fund's predictions of India's GDP growth at 7.2 per cent in 2017. At the close, the benchmark 30-share index, BSE Sensex added 216.98 or 0.68% at 32,245.87 with 18 components posting rise.
  • Trump, Hariri meet in White House, urge fighting against terrorism

    Trump, Hariri meet in White House, urge fighting against terrorism

    Foreign Policy reported that Lebanese lawmakers responded by lobbying their USA counterparts in Congress against the legislation. Secretary of State Rex Tillerson (R) meets with Lebanese Prime Minister Saad Hariri (L) at the State Department July 26, 2017.

    Jerusalem Old City Holy Site Metal Detectors Spark Fatal Clashes

    The government said security was necessary to stop weapons being smuggled into the compound by Palestinians and Israeli-Arabs. The wave of violence has gripped Jerusalem after the Friday prayers, which in many places were held outside of mosques.
    Google launches the feed inside its main iOS search app

    Google launches the feed inside its main iOS search app

    Google is updating its Google app on Android and iOS to incorporate more machine learning-based personalization features . Instead, Google combines the most important news stories of the day with ones about topics you've previously searched.


Death toll rises as Venezuela strike enters second day
A new USA sanctions announcement has coincided with a two-day strike and a major protest in Venezuela , Deutsche Welle reports . The latest deaths raised to 106 the number of people killed since April 1.

New press secretary reads Trump fan mail at press briefing
The key line here from Dylan: "How much monny do you have?" See the video below. So far, we don't have a real answer to this question.

Nintendo Switch Has Now Shipped Over 4.7 Million Units Worldwide
Mario Kart 8 Deluxe is even more impressive, achieving 3.54 million sales even though it was only released on April 28. Nintendo has sold over 4.7 million Nintendo Switch consoles since its release in March 2017.

Arrest warrant issued for Cowboys return man Lucky Whitehead
The Cowboys were not aware of Whitehead's arrest until the news was reported Monday. "I don't know what's going on". Running back Ezekiel Elliott was involved in an altercation on July 16 at a club in Dallas where a man was punched.

Two Jordanians killed and Israeli injured in Amman embassy attack
Following the attack, the Israeli deputy ambassador remained in Cairo; 85 staff members and their families returned to Israel. An Israeli government official said talks were underway whether to evacuate the embassy staff, given the tensions in Jordan.

Colorado unemployment at record-low 2.3 percent for third straight month
The number of unemployed, defined as workers without a job who actively sought one in the past month, dropped to 67,200 in June. Gedney speculates the department's numbers for mining and logging employment are likely being underestimated.

Nifty ends above 9900, Reliance Industries leads
DTH operator stocks also plummeted soon after the oil-to-telecom conglomerate Reliance Industries Ltd announced its cable TV. The RIL stock pushed the market higher by nearly 50 points in early trade.

India's Reliance sees profits jump 28 percent
Refining and petrochemicals contribute around 90 percent to overall revenue and profit of the company. Revenue from the media business fell 8.8% to Rs. 321 crore with a negative EBIT of Rs. 41 crore.

NY to DC in 29 minutes? It's time to get 'hyper'!
Musk said a trip from NY to Washington, which now takes about three hours by train, would take just 29 minutes under his plan. It consists of passenger (or car)-carrying pods that travel in a low-pressure tube.

Cavaliers talking contract with Derrick Rose
The Cavaliers are reportedly offering Rose a minimum contract for $2.1 million to join the defending Eastern Conference champions. The move gives the Cavs a decent player off the bench, but it could still not be enough for them to beat the Warriors .