000 demand United Kingdom allow terminally ill baby to travel to US
10 July, 2017, 00:21 | Author: Gregory Stephens
In a joint statement, the U.S. politicians said: "Our bill will support Charlie's parents' right to choose what is best for their son, by making Charlie a lawful permanent resident in the USA in order for him to receive treatments that could save his life".
After delivering the petition, Charlie's father Chris Gard told press Sunday afternoon: "We just want to thank you all for being here..."
The couple lost a lengthy legal battle after judges ruled in favour of experts at the London hospital who said trial therapy in the United States would not improve the child's quality of life.
'He's our son, he's our flesh and blood, ' she said.
Supporters say they will give the hospital a petition signed by 350,000 people backing the parents' rights to take the baby from the hospital for treatment.
Nonetheless, it would ask the High Court, which on April 11 ruled in the hospital's favour, to look at the case again "in the light of the claimed new evidence".
Charlie was born in August with mitochondrial DNA depletion syndrome, a progressive disease that causes muscle weakness and loss of motor skills, leaving those who have it unable to stand, walk, eat, talk and eventually breathe.
She said they had received support from doctors from all over the world, as well as the UK.
"Two global hospitals and their researchers have communicated to us as late as the last 24 hours that they have fresh evidence about their proposed experimental treatment", the hospital statement said.
That prompted the hospital to seek another High Court ruling. "There is nothing to lose, he deserves a chance".
Charlie's parents, Connie Yates and Chris Gard, joined supporters in a rally yesterday near Great Ormond Street hospital where he is being treated.
Ms Yates added: "If he's still fighting, we're still fighting".
A Vatican-run hospital in Rome then offered to treat Gard.
Sky News's Ashish Joshi spoke to a leading American pro-life lawyer who is close to the family, the chief executive of Americans United for Life, Catherine Glenn-Foster, about the new High Court hearing, who said it was "very, very, promising".
Charlie suffers from a rare genetic condition and has brain damage.
GOSH describes experimental nucleoside therapies as "unjustified" but its decision comes after two global hospitals and their researchers contacted them "as late as the last 24 hours" to say they have "fresh evidence about their proposed experimental treatment".
Great Ormond Street Hospital said it is "bound by the ruling of the High Court which expressly forbids us from transferring Charlie for nucleoside therapy anywhere". They have raised £1.3 million to pay for Charlie's treatment and transportation themselves through an online appeal.
Doctors finally bowed to global pressure on Friday to give the desperately ill baby another chance.After being handed fresh evidence by seven worldwide experts, Great Ormond Street asked the High Court to reopen the agonising case.
The petition comes as two USA congressmen have promised to introduce a bill that would give the baby and his parents lawful permanent residency status in the United States, so the boy can undergo treatment in the country.
But it said officials have met with Charlie's parents to let them know about the requested new hearing.
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